Support Groups E, F, G
How to Use -- Contents
Slightly Creaky does extensive research to find the links you would most likely need and provides them for you in an easy-to-find format. You can access the various categories from any of our web pages using the top or side menus. Each category has generalized headings, followed by more specific ones.
Many support groups are named for people, are generalized and provide assistance for several related conditions, or are otherwise difficult to interpret. This page provides links alphabetically based upon specific ailments. Please scroll down, use the index link, or use your browser's "find" or "search" feature to get the the area you are seeking.
In addition to support groups, we include links to informational sites on these conditions.
Links to Support Group pages:
Alphabetical List: |
Quick Links to selected categories: |
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Eye Disorders – see Vision |
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Support Group Home Page Includes directions, hints for use, etc. |
See the "Medical Information" page for Medical Definitions, Pharmaceuticals and Home Remedies, Advocacy Groups, Medical Articles | ||
| Have We Missed a Support Group or Ailment? We are constantly looking for more information and more links. Please help us improve our site and service. The Internet had millions of web pages dedicated to medical conditions and support groups; we can only sample a few of them. If you know any sites we should include write to suggestions@slightlycreaky.com | |||
Caution - Proceed with care. Slightly Creaky is not responsible for the content of web sites listed here nor the actions taken by the people owning, managing, or participating on them.
This listing is the result of more than 500 hours of research. It is the property of Slightly Creaky and may not be reproduced in any form. Every attempt has been made to provide an accurate description of each organization.
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Updates: We review and update this page every 4 months. Many support groups change names or even terminate their services. Should you discover a bad link or wish to suggest that we add one, please contact suggestions@slightlycreaky.com
We try to avoid commercial sites, but in many cases they are the only ones who provide information and support. If you are looking to buy or sell medical products, please use a generalized search engine.Support Groups "E"
"E"
Eye Disorders – see Vision |
| Ectodermal Dysplasia | National Foundation for Ectodermal Dysplasias The ectodermal dysplasia syndromes are a group of about 150 heritable disorders that affect the ectoderm, the outer layer of tissue in a developing baby. ED syndromes affect both males and females of all races and ethnic groups. The ectoderm contributes to the formation of many parts of the body, including the skin, sweat glands, hair, teeth, and nails. During embryonic development, these and/or other parts of the baby’s body, including the lens of the eye, parts of the inner ear, the fingers and toes, or nerves, among others, may fail to develop normally. |
| Education Services | The Office of Special Education and Rehabilitative Services The Office of Special Education and Rehabilitative Services (OSERS) supports programs that assist in educating children with special needs, provides for the rehabilitation of youth and adults with disabilities, and supports research to improve the lives of individuals with disabilities. |
| Edward's Syndrome -- see Trisomy | |
| Encephalitis | Encephalitis Society (Feb 3, 2009 - can not access site) The Society’s stated aim is to improve the quality of life of all people affected directly and indirectly by encephalitis. In some instances where people are affected by encephalitis the long-term prognosis can be very good, with many people coming through the illness with little or no difficulties. However because there are occasions where more severe problems can occur, we have had to make our information as broad and far-reaching as possible. |
| Epidermolysis Bullosa | EB Info World Epidermolysis Bullosa is a rare genetic skin disorder. One thing to describe its rareness is that a doctor or a nurse can be working a lifetime and never bump into this condition. It is estimated that about 10,000 Americans, mostly kids, have some form of EB. With modern medical care, some with the worse kinds of EB can live into their thirties. Unfortunately, by this age most will succumb to a particularly aggressive skin cancer (Squamous Cell) that is somehow touched off by EB. |
| Ehlers-Danlos Syndrome | Ehlers-Danlos National Foundation Individuals with EDS have a defect in their connective tissue, the tissue that provides support to many body parts such as the skin, muscles and ligaments. The fragile skin and unstable joints found in EDS are the result of faulty collagen. Collagen is a protein, which acts as a "glue" in the body, adding strength and elasticity to connective tissue. Joints: joint hypermobility; loose/unstable joints which are prone to frequent dislocations and/or subluxations; joint pain; hyperextensible joints (they move beyond the joint's normal range); early onset of osteoarthritis. Skin: soft velvet-like skin; variable skin hyper-extensibility; fragile skin that tears or bruises easily (bruising may be severe); severe scarring; slow and poor wound healing; development of molluscoid pseudo tumors (fleshy lesions associated with scars over pressure areas). |
| EDS Today Frequently, people with Ehlers-Danlos Syndrome are encouraged to perform as contortionists. Probably, most of these people are unaware of their condition, as few doctors are educated enough to diagnose it. And those who are aware tend not to know how dangerous repeated dislocation of the joints is for their future well-being and mobility | |
| Emphysema | Emphysema Foundation For Our Right To Survive As well as providing a very vital support, through a joint email discussion list and educational resource for its members, we are also working to educate and inform patients and care providers as well as promote deeper research for more effective treatment and hopefully a cure for Emphysema and other Chronic Obstructive Pulmonary Disease |
| Enchondroma Diseases | American Association of Multiple Enchondroma Diseases AAMED is the source for news & information about bone tumor diseases, research and services for adults and children with Enchondromatosis, Multiple Enchondroma, Ollier's disease, Maffucci's syndrome, and their families. |
| Endometriosis | Endometriosis Association Endometriosis is a painful, chronic disease that affects 5 1/2 million women and girls in the USA and Canada, and millions more worldwide. It occurs when tissue like that which lines the uterus is found outside the uterus -- usually in the abdomen on the ovaries, fallopian tubes, and ligaments that support the uterus; the area between the vagina and rectum; the outer surface of the uterus; and the lining of the pelvic cavity. Other sites for these endometrial growths may include the bladder, bowel, vagina, cervix, vulva, and in abdominal surgical scars. Less commonly they are found in the lung, arm, thigh, and other locations. |
| EnvironmentaL Health | American Lung Association As part of our American Lung Association® community, you have the benefits of in-depth and timely information on lung issues including asthma, tobacco control, and environmental health. |
| Epidermolysis Bullosa | Epidermolysis Bullosa Support & Information. Generic listing of international support groups and online information sites. |
| Dystrophic Epidermolysis Bullosa Research Association of America. "DEBRA's mission is to raise funds to encourage and support research into the causes, treatment and cure of Epidermolysis Bullosa and other genetic disorders of the skin, promote education and advocacy, and to provide support and services to people with EB and their families by assisting them in finding medical, social, and genetic counseling." | |
| Epilepsy | Epilepsy Foundation of America (EFA) The Epilepsy Foundation is the national voluntary agency solely dedicated to the welfare of the 3 million people with epilepsy in the U.S. and their families. The organization works to ensure that people with seizures are able to participate in all life experiences; and to prevent, control and cure epilepsy through research, education, advocacy and services. In addition to programs conducted at the national level, epilepsy clients throughout the United States are served by local Epilepsy |
| The Epilepsy Foundation of Metropolitan New York The Epilepsy Institute, a non-profit social service organization, is dedicated to improving the quality of life of people with epilepsy and their families. | |
| American Epilepsy Society The American Epilepsy Society promotes research and education for professionals dedicated to the prevention, treatment and cure of epilepsy. Membership in the Society is made up of clinicians and researchers investigating basic and clinical aspects of epilepsy, and other health-care professionals interested in seizure disorders. | |
| National Society for Epilepsy (UK) The National Society for Epilepsy is committed to providing information and support to people with epilepsy. We also provide care for people with epilepsy through medical and residential services. | |
| Parents Against Childhood Epilepsy (PACE) A research and Education organization | |
| Epispadias | Hypospadias.org Hypospadias and epispadias are birth anomalies that result from defective development of the penis during embryological development. Normally the urethra (the tube that serves as a conduit through the penis for passage of urine and semen) runs the entire length of the penis, forming an opening at the tip. However, the penis sometimes does not form correctly and the urethra fails to reach the tip of the penis. The incompletely developed urethra may form an opening at the under side of the penis (hypospadias) or the upper side of the penis (epispadias). |
| Erythropoietic Protoporphyria | Erythropoietic Protoporphyria Research and Education Fund the Erythropoietic Protoporphyria Research and Education Fund is a support group exclusively for patients with EPP and their families. |
| Essential Tremor | International Essential Tremor Foundation (IETF) Of the 20-plus different kinds of tremor, essential tremor is the most common. Essential Tremor is also known as familial tremor, benign essential tremor or hereditary tremor. There are medical treatments that can help people with tremor live a fuller life, but only a small percentage of those with this condition get medical help. This site is devoted to helping people diagnosed with essential tremor. |
| Worldwide Education and Awareness for Movement Disorders WE MOVE is the Internet's most comprehensive resource for movement disorder information and the hub of movement disorder activities on the web. | |
| National Tremor Foundation, The We aim to offer a support and advice to all sufferers of tremor. The most common of these is essential tremor, quite often hereditary, but we also have members with more complex and unusual tremors such as writing tremor, primary orthostatic tremor and myoclonic dystonic to name a few. | |
| Euthanasia | Not Dead Yet People already have the right to refuse unwanted treatment, and suicide is not illegal. What we oppose is a public policy that singles out individuals for legalized killing based on their health status. This violates the Americans With Disabilities Act, and denies us the equal protection of the law. Some bioethicists have even started to argue that intellectually disabled people are not persons under the law. |
| Eye Disorders – see Vision | |
Support Groups "F"
"F"
| Fabry Disease | Fabry Support & Information Group Our mission is to raise awareness of Fabry disease and its symptoms. Fabry disease results from abnormal deposits of a particular fatty substance (called globotriaosylcera-mide) in blood vessel walls throughout the body. |
| Facial Disorders | Let's Face It Let's Face It is an online resource for the dissemination of a wide range of information about facial differences. Our intended audience includes individuals with facial differences; their friends and family; medical, dental and mental health care providers; teachers; employers, and those interested in learning more about facial differences. Through the sharing of this information, we hope to promote the full and equal participation of people with facial differences in all facets of life. |
| Familial Dysautonomia | Familial Dysautonomia Hope Foundation Familial Dysautonomia is a progressive and fatal neurological disorder that affects the autonomic and sensory nervous systems. An astonishing 1 in 25 to 30 Eastern European (Ashkenazi) Jews carry the common mutation that causes FD, a rate similar to that of Tay-Sachs. |
| Fanconi Anemia | Jewish Genetic Disease Consortium A number of genetic disorders occur more frequently in certain ethnic groups. In the Ashkenazi Jewish population (those of Eastern European descent), approximately 1 in 4 individuals is a carrier of a gene for a condition that could be severe and may result in the early death of a child. |
| Fatty Liver Disease | Children’s Liver Disease Foundation Our vision is that childhood liver disease will be understood and fought effectively thereby ensuring that young people with liver disease and families will be able to take control of their lives and achieve their full potential. |
| Fatty Oxidation Disorders | FOD Family Support Group Fatty Oxidation Disorders are genetic metabolic deficiencies in which the body is unable to oxidize fatty acids to make energy because an enzyme is either missing or not working correctly. |
| Fetal Alcohol Syndrome | FASCETS The mission of FASCETS (Fetal Alcohol Syndrome Consultation, Education and Training Services, Inc) is to contribute to the prevention of Fetal Alcohol Spectrum Disorders by increasing understanding of FASD as a brain-based physical disability, thereby preventing secondary defensive behaviors and improving outcomes. .Our objectives are to:: support improved outcomes for those with FASD, develop partnerships among parents and professionals, disseminate information about FASD throughout the community, enhance existing programs through augmentation or adaptation, support development and implementation of effective, appropriate programs, parenting and practice techniques in families, agencies and institutions, and provide relevant, current information and resources for supporting children, adolescents and adults with FASD, their parents, families, professionals, agencies and institutions. |
| Arium Arium is a non-profit organization dedicated to the prevention of addictions and their effects upon individuals, families and our communities, through the provision of resources, information and research concerning drug and alcohol abuse, fetal alcohol syndrome and other substance abuse issues | |
| FG Syndrome | FG Syndrome Family Alliance, Inc. (Also called Opitz-Kaveggia syndrome ) FG Syndrome is an X-linked genetic syndrome, believed to affect both boys and girls; which causes a variety of physical anomolies, developmental delays, and special health needs. |
| Fibrous Dysplasia | Fibrous Dysplasia Support Online Fibrous dysplasia (FD) is a bone disease characterized by areas of abnormal growth or lesions in one, several, or many bones. FD can occur in any bone. The skull frequently is affected as are legs, arms, and ribs. The majority (about 70 %) of people with FD have only one bone site involved, a condition called monostotic FD. When FD is in more than one bone it is called polyostotic FD or PFD. |
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Also see Pain Management |
Immunesupport.com We offer over 6,000 Fibromyalgia and Chronic Fatigue Syndrome articles and medical abstracts, current treatment advice from the world's leading FM & CFS specialists, and the world's busiest FM & CFS message boards. |
| Action For CFIDS/M.E. Fibromyalgia help. | |
| American Fibromyalgia Syndrome Association, Inc. AFSA is the only charitable organization whose primary mission is to seed research in FMS and CFS. We acknowledge that patient and physician education, public awareness and advocacy are all important ingredients in aiding the lives of people with FMS and CFS. | |
| National Fibromyalgia Association The National Fibromyalgia Association’s mission is:To develop and execute programs dedicated to improving the quality of life for people with fibromyalgia. | |
| National ME/FM Action Network is a Canadian organization dedicated to advancing the recognition and understanding of Myalgic Encephalomyelitis / Chronic Fatigue Syndrome and Fibromyalgia Syndrome through education, advocacy, support, and research.The Network seeks to effect positive change in the attitudes, policies, and practices of government, medical governing bodies, business, the media, and the general public. | |
| Fibrodysplasia Ossificans | International Fibrodysplasia Ossificans Progressiva Assoc. Fibrodysplasia Ossificans Progressiva (FOP). Simply stated, FOP causes muscles and other connective tissue to turn into bone, eventually causing immobility as FOP bone fuses joints. |
| Fibromuscular Dysplasia | Fibromuscular Dysplasia Society of America The FMDSA website is designed to help patients and physicians find the latest information on Fibromuscular Dysplasia as well as information on how you can participate in research, spread awareness, and find support resources |
| Fibrous dysplasia | Daily Strength DailyStrength.org is the most comprehensive health network of people sharing their advice, treatment experiences, and support. Keep a wellness journal, read members’ stories, and chat with new friends with over 500 support groups. |
| Fistula | Fistula Foundation, The An obstetric fistula develops when blood supply to the tissues of the vagina and the bladder (and/or rectum) is cut off during prolonged obstructed labor. The tissues die and a hole forms through which urine and/or feces pass uncontrollably. Women who develop fistulas are often abandoned by their husbands, rejected by their communities, and forced to live an isolated existence. |
| Worldwide Fistula Fund Our mission is to promote excellent, ethical whole-person care for women with obstetric fistulas. Our strategy is to band together and support a network of committed individuals with fistula expertise who share this common ideal. | |
| Floating Harbor Syndrome | Floating Harbor Syndrome Support Group "Our support group has 50 member families from the following countries: England, USA, Åustralia, Brazil, The Netherlands, Canada, Israel, Ireland, France, Belgium, Scotland, Mexico and New Zealand. " |
| Food Disorders | National Mental Health Association Mental Health America is the country’s leading nonprofit dedicated to helping ALL people live mentally healthier lives. |
| Also see Weight | |
| Foster Care | Hope4KidZ, Inc Hope4KidZ is a grassroots effort to increase the protection, safety, and well-being of children who are in the care, custody, and control of the foster care system. The issue of abused children is not heart-warming, but it is heart-wrenching, and together, we can implement solutions and demand absolute accountability of anyone who would harm a child with impunity. |
| Fragile X | National Fragile X Foundation Fragile X is a family of genetic conditions, which can impact individuals and families in various ways. These genetic conditions are related in that they are all caused by gene changes in the same gene, called the FMR1 gene. Fragile X syndrome is the most common cause of inherited mental impairment. This impairment can range from learning disabilities to more severe cognitive or intellectual disabilities. (Sometimes referred to as mental retardation.) FXS is the most common known cause of autism or "autistic-like" behaviors. Symptoms also can include characteristic physical and behavioral features and delays in speech and language development. |
| FRAXA Research Foundation, Inc. Fragile X is the most common inherited cause of mental impairment. It is also the most common known cause of autism. | |
| Freeman Sheldon Syndrome | National Craniofacial Association The National Craniofacial Association has been dedicated to assisting children and adults who have craniofacial disorders resulting from disease, accident, or birth. |
| Freeman-Sheldon Parent Support Group Freeman-Sheldon Syndrome (also known as "Whistling Face Syndrome") is a rare genetic condition which characteristically includes a small "whistling" mouth, a flat mask-like face, club feet, joint contractures usually involving the fingers and hands, and under-development of the cartilage of the nose. Intelligence is usually normal. Most of the features of this syndrome are due to muscle weakness. | |
| Fructose Intolerance | MedHelp - Fructose Intolerant message board and support. |
Support Groups "G"
"G"
| Galactosemia | Parents of Galactosemic Children Parents of Galactosemic Children provides information and networking between affected families and professionals. Classic Galactosemia is a rare genetic metabolic disorder. The child inherits a gene from both parents. Normally when a person consumes a product that contains lactose (e.g., dairy products such as milk, cheese, butter), the body breaks the lactose down into galactose and glucose. Glucose is the sugar used by the body for energy. Galactosemia means too much galactose in the blood caused by the individual "missing" the enzyme to convert galactose into glucose. This accumulation of galactose is a poison to the body and can cause serious complications such as the following and if untreated, as high as 75% of infants will die: an enlarged liver: kidney failure, cataract, brain damage |
| Gastrointestinal Disorders | Foundation for Functional Gastrointestinal Disorders The International Foundation for Functional Gastrointestinal Disorders addresses the issues surrounding life with gastrointestinal functional and motility disorders and increases the awareness about these disorders among the general public, researchers, regulators, and the clinical care community. |
| Pediatric Adolescent Gastroesophageal Reflux Association The Pediatric / Adolescent Gastroesophageal Reflux Association provides information and support to parents and children dealing with Gastroesophageal Reflux, a condition in which stomach contents - food and gastric acid - frequently flow back up out of the stomach into the esophagus. The food that comes up may or may not flow all the way out of the mouth. It may be forceful vomiting which rapidly and completely empties the stomach, or it can be more like a "wet burp" that doesn't reach the mouth. | |
| Gauchers Disease | Children's Gaucher Research Fund The Children's Gaucher Disease Research Fund is a non-profit organization, that raises funds to coordinate and support research aimed at finding a cure for Gaucher disease as well as providing support to families who have children who battle this disease. Gaucher ('go-shay) disease is a genetic disorder, which results in the deficiency in an enzyme, causing old cells to be stored in areas such as the liver, spleen, lungs, lymph system, and bones instead of being expelled from the body. In more severe cases they also accumulate in the central nervous system. |
| National Gaucher Foundation The National Gaucher Foundation is dedicated to supporting and promoting research into the causes of, and a cure for Gaucher Disease. The mission of the NGF is to fund vital research programs to ultimately find alternate treatments and a cure. To meet the ever- increasing needs of individuals with Gaucher disease and their families, the NGF has financial assistance programs and offers a wide-range of resources. In an effort to promote community/physician awareness and educational programs, the NGF holds live Web meetings, conferences, patient meetings and seminars, publishes a quarterly newsletter and has both national and regional marketing programs. | |
| Jewish Genetic Disease Consortium A number of genetic disorders occur more frequently in certain ethnic groups. In the Ashkenazi Jewish population (those of Eastern European descent), approximately 1 in 4 individuals is a carrier of a gene for a condition that could be severe and may result in the early death of a child. | |
| Glaucoma | Glaucoma Research Foundation Glaucoma is a group of diseases that can steal sight without warning or symptoms. Three million Americans have it. Only half know. |
| Glaucoma Support Group. "The first and third Wednesday of every month a Wills Eye Institute glaucoma specialist or a guest specialist, hosts a question-and-answer session for glaucoma patients, families, and friends. " | |
| Glaucoma Support at Daily Strength | |
| The Glaucoma Foundation. "Support groups can play an important role in helping glaucoma patients understand their disease and learn how to manage it over their lifetime. However, the type of support needed varies greatly depending upon the age of the patient and the severity of the disease. TGF is working to connect individuals who share experiences not common to all patients, are not represented in local support groups, and who are finding it difficult to locate other patients who can relate to their personal situation." | |
| American Health Assistance Foundation "Funds research seeking cures for Alzheimer’s disease, age-related macular degeneration and glaucoma, and provides the public with information about risk factors, preventative lifestyles, available treatments and coping strategies." | |
| Glaucoma Support Group. A community of patients, family members and friends dedicated to dealing with Glaucoma, together. | |
| The Glaucoma Support Center. "Every person is unique, but when you face a challenge like glaucoma, you are never alone. Countless people have faced exactly same diagnosis and have survived and thrived. The following guide is designed to help you navigate your journey with the best information and resources that helped other survivors when they faced the same challenge." | |
| Gilbert’s Disease | Children’s Liver Disease Foundation Our vision is that childhood liver disease will be understood and fought effectively thereby ensuring that young people with liver disease and families will be able to take control of their lives and achieve their full potential. |
| Gilbert's Syndrome | Action on Gilbert's Syndrome (UK) "I run this small but friendly organisation working solely for people experiencing Gilbert’s Syndrome, and for no profit. I've gathered this information painstakingly from years of searching, and some is necessarily anecdotal. I'm not medically qualified, and it’s not meant to be a definitive guide to how to deal with Gilbert’s Syndrome, because one of the problems we are set up to overcome is the lack of information and support on this subject." |
| Glutaric Aciduria | IOGA Dedicated to promoting early detection, preventing neurological damage, and assisting in the treatment and rehabilitation of those affected by Glutaric Aciduria Type I and other neurological diseases. Glutaric Acidemia is a genetically inherited disease, also called Glutaric Aciduria, which causes brain damage in infants and young children. |
| Gluten Intolerance | Gluten Intolerance Group The mission of the Gluten Intolerance Group of North America® is to provide support to persons with gluten intolerances, including celiac disease, dermatitis herpetiformis, and other gluten sensitivities, in order to live healthy lives. |
| Glycine Disorders | NKH International Family Network Nonketotic Hyperglycinemia is an inherited metabolic disorder. Patients suffering from this disorder have elevated level of glycine, a basic amino acid, in blood, cerebrospinal fluid (CSF), and urine. Some patients died in the newborn period after a course characterized by lethargy, weak cry, generalized hypotonia, absent reflexes, and periodic myoclonic jerks. Survivors are subject to various degrees of mental retardation. |
| Glycoprotein Storage Diseases | International Society for Mannosidosis & Related Diseases ISMRD advocates for families and patients affected by one of the Glycoprotein Storage Diseases: Alpha-Mannosidosis, Aspartylglucosaminuria, Beta-Mannosidosis, Fucosidosis, Galactosialidosis, Mucolipidosis, Schindler Disease and Sialidosis. These diseases are the ultra-orphans of the Lysosomal Storage Disease family, which encompass over 40 similar disorders, and currently have few treatments beyond symptomatic care. |
| Jewish Genetic Disease Consortium A number of genetic disorders occur more frequently in certain ethnic groups. In the Ashkenazi Jewish population (those of Eastern European descent), approximately 1 in 4 individuals is a carrier of a gene for a condition that could be severe and may result in the early death of a child. | |
| Glycosylation | CDGS Family Network, The CDG are a group of inherited disorders that affect a process called glycosylation. Glycosylation is a process by which all human cells build long sugar chains that are attached to proteins. If one of these enzymes malfunction then the cells in the body of a child or adult cannot glycosylate correctly. There are approximately 500 cases of all types of CDG worldwide. Some children with CDG have serious life-threatening medical problems during their infancy. |
| Goiter | Daily Strength DailyStrength.org is the most comprehensive health network of people sharing their advice, treatment experiences, and support. Keep a wellness journal, read members’ stories, and chat with new friends with over 500 support groups. |
| Thyroid Foundation of America Your thyroid gland tells every cell in your body the rate at which it should function. Having too little hormone, called hypothyroidism, puts you into a dragging slowdown. This is a problem for more than 10 million Americans-of whom 8 million don't know it. Having too much hormone, called hyperthyroidism, races your engine, so you feel all revved up-as if you were burning out. This problem affects some 4.5 million Americans, but at least 600,000 of them have yet to be diagnosed. | |
| Goldenhar Syndrome | National Craniofacial Association The National Craniofacial Association has been dedicated to assisting children and adults who have craniofacial disorders resulting from disease, accident, or birth. |
| Goodpasture’s Syndrome | Daily Strength DailyStrength.org is the most comprehensive health network of people sharing their advice, treatment experiences, and support. Keep a wellness journal, read members’ stories, and chat with new friends with over 500 support groups. |
| Gorlin Syndrome | National Craniofacial Association The National Craniofacial Association has been dedicated to assisting children and adults who have craniofacial disorders resulting from disease, accident, or birth. |
| Gout | Arthritis.org: Gout Gout (gowt) causes sudden, severe attacks of pain and tenderness, redness, warmth, and swelling in some joints. Usually affects one joint at a time -- often the big toe. Gout results from a build-up in the body of too much uric acid, which forms crystals that deposit in joints and cause inflammation. Uric acid is a substance that normally forms when the body breaks down waste products called purines. Gout can be inherited or happen as a complication of another condition. |
| Purine Research Society When we consider the many different roles purines play in our metabolism, it is not surprising that the diseases of purine metabolism are as varied, ranging from asymptomatic conditions, which are only discovered accidentally, to disorders with severe neurological abnormalities, which are ultimately fatal. As with other metabolic diseases, each disorder is caused by a defective gene which results in an enzyme with too little or too much catalytic activity. | |
| Granuloma Anularea | Granuloma Anularea. "Granuloma annulare is a raised, bumpy, or ring-shaped lesion, which can occur singly or in groups on the skin. It is more common in children and young adults, although it may affect people of all ages. Women are twice as likely as are men to develop granuloma annulare." |
| Granuloma Anularea. (Mayo Clinic) "Granuloma annulare is occasionally associated with diabetes and thyroid disease, but most people with granuloma annulare are otherwise healthy." | |
| Granuloma Anularea Forum. (From medHelp) "This forum is for questions regarding Dermatology issues" | |
| Graves' Disease | National Graves' Disease Foundation The leading cause of hyperthyroidism, Graves' Disease represents a basic defect in the immune system, causing production of immunoglobulins (antibodies) which stimulate and attack the thyroid gland, causing growth of the gland and overproduction of thyroid hormone. Similar antibodies may also attack the tissues in the eye muscles and in the pretibial skin (the skin on the front of the lower leg). |
| Growth Hormone Deficiency | The Magic Foundation Major Aspects of Growth In Children (MAGIC) is made up of more than 25,000 families. The majority of us are parents of children with growth disorders and others are affected adults. |
| Guillain-Barré Syndrome | GBS/CIDP Foundation Guillain-Barré Syndrome is an inflammatory disorder of the peripheral nerves those outside the brain and spinal cord. It is characterized by the rapid onset of weakness and, often, paralysis of the legs, arms, breathing muscles and face. GBS is the most common cause of rapidly acquired paralysis in the United States today, affecting one to two people in every 100,000.It typically begins with weakness and/or abnormal sensations of the legs and arms. It can also affect muscles of the chest, face and eyes. Although many cases are mild, some patients are virtually paralyzed. Breathing muscles may be so weakened that a machine is required to keep the patient alive. Many patients require an intensive care unit during the early course of their illness, especially if support of breathing with a machine is required. Although most people recover, the length of the illness is unpredictable and often months of hospital care are required. The majority of patients eventually return to a normal or near normal lifestyle, but many endure a protracted recovery and some remain wheelchair-bound indefinitely. |
| Gulf War Syndrome | GulfLINK GulfLINK was established in 1995 to provide on-line access to medical, operational, and intelligence documents from the 1990-1991 Gulf War. Its purpose was and is to provide Service members, veterans, and any interested person with information on what happened during that war that might have affected the health of those who served. |
| Deployment Health Clinical Center Deployment Health Clinical Center arose from the studies and treatment for Gulf War illnesses. DHCC is chartered by the DoD Health Affairs as the clinical arm of the overall effort to serve soldiers during post-deployment. This site provides content relevant to health-related issues that soldiers encounter when returning from deployment. | |
Links to Support Group pages:
Alphabetical List: |
Quick Links to selected categories: |
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Eye Disorders – see Vision |
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Support Group Home Page Includes directions, hints for use, etc. |
See the "Medical Information" page for Medical Definitions, Pharmaceuticals and Home Remedies, Advocacy Groups, Medical Articles | ||
| Have We Missed a Support Group or Ailment? We are constantly looking for more information and more links. Please help us improve our site and service. The Internet had millions of web pages dedicated to medical conditions and support groups; we can only sample a few of them. If you know any sites we should include write to suggestions@slightlycreaky.com | |||
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