Support Groups L, M
How to Use -- Contents
Slightly Creaky does extensive research to find the links you would most likely need and provides them for you in an easy-to-find format. You can access the various categories from any of our web pages using the top or side menus. Each category has generalized headings, followed by more specific ones.
Many support groups are named for people, are generalized and provide assistance for several related conditions, or are otherwise difficult to interpret. This page provides links alphabetically based upon specific ailments. Please scroll down, use the index link, or use your browser's "find" or "search" feature to get the the area you are seeking.
In addition to support groups, we include links to informational sites on these conditions.
Links to Support Group pages:
Alphabetical List: |
Quick Links to selected categories: |
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Support Group Home Page Includes directions, hints for use, etc. |
See the "Medical Information" page for Medical Definitions, Pharmaceuticals and Home Remedies, Advocacy Groups, Medical Articles | ||
| Have We Missed a Support Group or Ailment? We are constantly looking for more information and more links. Please help us improve our site and service. The Internet had millions of web pages dedicated to medical conditions and support groups; we can only sample a few of them. If you know any sites we should include write to suggestions@slightlycreaky.com | |||
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Updates: We review and update this page every 4 months. Many support groups change names or even terminate their services. Should you discover a bad link or wish to suggest that we add one, please contact suggestions@slightlycreaky.com
We try to avoid commercial sites, but in many cases they are the only ones who provide information and support. If you are looking to buy or sell medical products, please use a generalized search engine.Support Groups "L"
"L"
| Lactose Intolerance | Daily Strength DailyStrength.org is the most comprehensive health network of people sharing their advice, treatment experiences, and support. Keep a wellness journal, read members’ stories, and chat with new friends with over 500 support groups. |
| Langer-Giedion Syndrome | Langer-Giedion Syndrome. "Langer-Giedion syndrome (LGS) is named after the two doctors who undertook the main research into the condition in the 1960s. It is a very rare condition and diagnosis is usually made at birth or in early childhood." |
| Latex Allergies | American Latex Allergy Association The American Latex Allergy Association is a national organization that creates awareness of latex allergy through education, and provides support to individuals who have been diagnosed with latex allergy. This website is designed to provide educational materials, publications and product information to assist you with your understanding of natural rubber latex allergy. |
| Learning Disabilities | National Mental Health Association Mental Health America is the country’s leading nonprofit dedicated to helping ALL people live mentally healthier lives. |
| National Center for Learning Disabilities The National Center for Learning Disabilities works to ensure that the nation's 15 million children, adolescents and adults with learning disabilities have every opportunity to succeed in school, work and life. | |
| Legg-Calve-Perthes Disease - see Perthes Disease | |
| Legionnaires' Disease | Legionella.org Our mission is to improve awareness and recognition of Legionnaires' disease as a community or hospital-acquired pneumonia, provide current information about Legionella infections to healthcare professionals, suggest a proactive approach for prevention of Legionnaires' disease by routine environmental cultures. |
| Leprosy (Hansen's disease) | Leprosy Mission International TLM is a worldwide partnership, active in over 50 countries, with a vision for a world without leprosy and a passion to eradicate the causes and consequences of leprosy. As long as leprosy afflicts individuals and communities, we are committed to doing all we can to break its power and impact. This means more than just a cure for the disease; it means addressing the underlying causes, working to prevent disability and restoring dignity and wholeness. |
| American Leprosy Missions Founded in 1906, American Leprosy Missions (ALM) provides care to people around the world with leprosy and with Buruli ulcer and related disabilities. ALM is a non-denominational Christian ministry of hope and restoration for those suffering with these diseases. The ministry supports scores of projects in approximately 15 countries. Donor gifts provide training and transportation for leprosy workers, case-finding and diagnosis, physical and vocational rehabilitation, community development and much more | |
| Lesch-Nyhan Syndrome | Purine Research Society When we consider the many different roles purines play in our metabolism, it is not surprising that the diseases of purine metabolism are as varied, ranging from asymptomatic conditions, which are only discovered accidentally, to disorders with severe neurological abnormalities, which are ultimately fatal. As with other metabolic diseases, each disorder is caused by a defective gene which results in an enzyme with too little or too much catalytic activity. |
| Leukemia | Leukemia and Lymphoma Society, The The Leukemia & Lymphoma Society is the world's largest voluntary health organization dedicated to funding blood cancer research, education, and patient services. The Society's mission: Cure leukemia, lymphoma, Hodgkin's disease and myeloma, and improve the quality of life of patients and their families. |
| Childhood Leukemia Center Created to serve the childhood cancer community by providing information, emotional support, and advocacy. | |
| Lauri Strauss Leukemia Foundation Our mission is to find a cure for leukemia and allied cancers by means of awarding LSLF Discovery Grants providing “seed money” to young investigators in the fields of leukemia and allied cancers. Additionally the Foundation provides for patient care, promotes marrow donor education and conducts marrow drives within blood drives. | |
| JMML Foundation, The Juvenile Myelomonocytic Leukemia (JMML) is a rare form of leukemia which affects young children, generally under the age of 5. JMML affects around 4 in every million children and the average age at diagnosis is around 2 years old. | |
| Lewy Body Dementia | Lewy Body Dementia Association, Inc. Lewy body dementia is a progressive brain disease and the second leading cause of degenerative dementia in the elderly, accounting for up to 20% of all dementia cases, or 800,000 patients in the US. Over 50% of Parkinson’s disease patients develop “Parkinson’s disease dementia” (PDD), which accounts for at least 750,000 patients. (PDD is also a Lewy body dementia.) |
| Limb Diseases / Amputations | Limbkids Limbkids Support Association Inc is a non-profit, voluntary organization comprised of parents, professionals and interested people concerned with the care of children who have congenital or acquired limb differences. |
| Limbless Association (UK) The Limbless Association provides information, advice and support for people of all ages who are without one or more limbs. It has a nationwide network of volunteer visitors who are all amputees themselves, offering support and encouragement to prospective amputees, carers and those already trying to come to terms with limb loss or deficiency. | |
| Liver Diseases | American Liver Foundation The American Liver Foundation (ALF) is the nation's leading nonprofit organization promoting liver health and disease prevention. ALF provides research, education and advocacy for those affected by liver-related diseases, including hepatitis. |
| Children's Liver Association for Support Services C.L.A.S.S. is an all-volunteer, nonprofit organization dedicated to serving the emotional, educational, and financial needs of families coping with childhood liver disease and transplantation. Our goal is to be both a service to families and a valuable resource for the medical community. | |
| Children’s Liver Disease Foundation Our vision is that childhood liver disease will be understood and fought effectively thereby ensuring that young people with liver disease and families will be able to take control of their lives and achieve their full potential. | |
| Leukodystrophy | United Leukodystrophy Foundation The leukodystrophies are a group of rare genetic disorders that affect the central nervous system by disrupting the growth or maintenance of the myelin sheath that insulates nerve cells. These disorders are progressive, meaning that they tend to get worse throughout the life of the patient. |
| Lowe Syndrome | Lowe Syndrome Association Boys with Lowe Syndrome are born with cataracts in both eyes, which are usually removed at a few months of age. Most boys are fitted with glasses, contacts, or a combination of the two. Glaucoma is present in about 50% of the boys with Lowe syndrome, though usually not at birth. Prescription eye drop and/or surgery is required to maintain appropriate eye pressure in these cases. |
| Lung Diseases | American Lung Association As part of our American Lung Association® community, you have the benefits of in-depth and timely information on lung issues including asthma, tobacco control, and environmental health |
| Lung Disease at the Deborah Heart & Lung Center. Information about a variety of lung-related conditions. | |
| Lung Disease Helpline. "This information is provided as a resource and does not constitute an endorsement for any group." | |
| Lupus | Lupus Alliance of America Lupus can be a frightening, uncertain disease. Feeling scared and a bit lost is normal when you first hear the diagnosis…but there is more to having this disease than these feelings. The Lupus Alliance of America offers understanding and support, provides information and assists patients to get past “having lupus” and back to living. The Alliance, our affiliates and all of our activities are committed to people with lupus and helping them to address the effects of lupus. |
| Lupus Foundation of America With nearly 300 chapters, branches and support groups in 32 states, the Lupus Foundation of America is the nation's leading non-profit voluntary health organization dedicated to finding the causes and cure for lupus. Our mission is to improve the diagnosis and treatment of lupus, support individuals and families affected by the disease, increase awareness of lupus among health professionals and the public, and find the causes and cure. Research, education, and patient services are at the heart of LFA's programs. | |
| Alliance for Lupus Research (ALR) To find better treatments and ultimately prevent and cure systemic lupus erythematosus (SLE, or lupus), a debilitating autoimmune disease. | |
| Lyme Disease | Lyme Disease Foundation, Inc. The Lyme Disease Foundation (LDF) is the premier nonprofit dedicated to finding solutions for tick-borne disorders. Realizing the ability to find solutions involves a multi-discipline effort, the LDF includes the four cornerstones of progress (businesses, patients, government, and the medical community) to work together to find solutions to tick-borne disorders. (Also has information about Rockey Mountain Spotted Fever.) |
| Lyme Disease Network Welcome to The Lyme Disease Network, dedicated to public education of the prevention and treatment of Lyme disease and other tick-borne illnesses. | |
| American Lyme Disease Foundation, Inc. The American Lyme Disease Foundation, Inc. is dedicated to the prevention, diagnosis and treatment of Lyme disease and other tick-borne infections. The Foundation plays a key role in providing reliable and scientifically accurate information to the public, medical community and government agencies about tick-borne diseases and their effects on human health and quality of life. | |
| Lymphangioleio- myomatosis |
LAM Foundation Lymphangioleiomyomatosis, better known as LAM, is a progressive lung disease that affects women of all races, usually during their childbearing years. Symptoms include a collapsed lung, fluid in the lungs, shortness of breath, fatigue, cough, and chest pain. LAM often goes misdiagnosed as asthma, emphysema, and pulmonary bronchitis. Scientists estimate that there could be as many as 250,000-300,000 LAM patients worldwide who are going misdiagnosed or undiagnosed. |
| Lymphatic Malformation | Children Afflicted With Lymphatic Malformations - CALM For over 100 years, doctors referred to these disorders as tumors. They often identified the disorders with the term "lymphangioma" and "cystic hygroma." Now, doctors believe that these conditions are not really tumors, but rather they are deformed tissues that result from abnormal embryonic development of the lymphatic vascular system. Thus, the term,"lymphatic malformation" (LM), is more appropriate. |
| Lymphedema | National Lymphedema Network (NLN) Lymphedema is an accumulation of lymphatic fluid in the interstitial tissue that causes swelling, most often in the arm(s) and/or leg(s), and occasionally in other parts of the body. Lymphedema can develop when lymphatic vessels are missing or impaired (primary), or when lymph vessels are damaged or lymph nodes removed (secondary). When the impairment becomes so great that the lymphatic fluid exceeds the lymphatic transport capacity, an abnormal amount of protein-rich fluid collects in the tissues of the affected area. Left untreated, this stagnant, protein-rich fluid not only causes tissue channels to increase in size and number, but also reduces oxygen availability in the transport system, interferes with wound healing, and provides a culture medium for bacteria that can result in lymphangitis (infection). |
| Lymphomic Diseases
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Lymphoma Coalition The Lymphoma Coalition, a non-profit network organization of lymphoma patient groups, is a global initiative dedicated to raising awareness of lymphoma, a common form of cancer. |
| Lymphoma Support Groups Builds awareness and support for lymphoma patients and survivors. Share personal experiences, evaluate information and get support during times of need, illness, treatment or recovery. | |
| Lymphoma Research Foundation If you or a loved one has been diagnosed with lymphoma, the most common blood cancer and third most common cancer of childhood, the Lymphoma Research Foundation (LRF) is here to help. On this Web site you will find valuable information about the different types of lymphoma, diagnostic techniques your health care practitioners may use, and treatment options. | |
Support Groups "Ma" through "Mi"
"Ma" through "Mi"
| Macular Degeneration | Macular Degeneration Foundation, Inc. Eyesight.org receives top ranking by all major search engines for a reason ... It continues to be the leading resource for information concerning Macular Degeneration to a growing population of individuals affected by the disease and related low vision conditions. |
| Macular Degeneration Partnership Macular degeneration is a progressive eye condition affecting as many as 15 million Americans and millions more around the world. The disease attacks the macula of the eye, where our sharpest central vision occurs. Although it rarely results in complete blindness, it robs the individual of all but the outermost, peripheral vision, leaving only dim images or black holes at the center of vision. | |
| American Health Assistance Foundation "Funds research seeking cures for Alzheimer’s disease, age-related macular degeneration and glaucoma, and provides the public with information about risk factors, preventative lifestyles, available treatments and coping strategies." | |
| Macular Disease Society (UK) The Macular Disease Society aims to build confidence and independence for those with central vision impairment. We are the only UK charity dedicated to helping people with macular degeneration. | |
| American Macular Degeneration Foundation (AMDF) Committed to the prevention and cure of macular degeneration and offers hope and support to those afflicted and their families. The Foundation will be a major voice in establishing the national research agenda for macular degeneration through promoting an alliance among the scientific community, government, and victims of the disease and their families to ensure the prevention and cure of the disease. | |
| Maple Syrup Urine Disease | MSUD Family Support Group Maple Syrup Urine Disease (MSUD) is an inherited metabolic disorder, that, if untreated, causes mental retardation, physical disabilities and death. First described as a disease in 1954, it is a rare disorder, believed to be in all ethnic groups worldwide. The national incidence is 1 in 225,000 births. MSUD derives its name from the sweet, burnt sugar, or maple syrup smell of the urine. The disorder affects the way the body metabolizes (processes) certain components of protein. These components are the three branched-chain amino acids leucine, isoleucine, and valine. These amino acids accumulate in the blood causing a toxic effect that interferes with brain functions. |
| Daily Strength DailyStrength.org is the most comprehensive health network of people sharing their advice, treatment experiences, and support. Keep a wellness journal, read members’ stories, and chat with new friends with over 500 support groups. | |
| Save Babies Through Screening Foundation, Inc. Its mission is to improve the lives of babies by working to prevent disabilities and early death resulting from disorders detectable through newborn screening. Without proper screening affected children will likely suffer mental retardation, physical disability or even death. Most affected children can lead normal, healthy lives when diagnosed and started on treatment early. | |
| Marfan Syndrome | National Marfan Foundation The National Marfan Foundation is dedicated to saving lives, and improving the quality of life for individuals and families affected by the Marfan syndrome and related disorders. Marfan syndrome is a heritable condition that affects the connective tissue. The primary purpose of connective tissue is to hold the body together and provide a framework for growth and development. In Marfan syndrome, the connective tissue is defective and does not act as it should. Because connective tissue is found throughout the body, Marfan syndrome can affect many body systems, including the skeleton, eyes, heart and blood vessels, nervous system, skin and lungs. |
| Federation of Marfan Syndrome Organizations The purposes of IFMSO are to: • Share current, accurate information about the Marfan syndrome worldwide and facilitate international communication among medical professionals and the general public. • Establish standards for diagnosis and treatment of the Marfan syndrome. • Support and foster research throughout the world and facilitate communication with research centers and researchers worldwide. |
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| Maffucci's Syndrome | Multiple Enchondroma Diseases "AAMED is comprised of individuals with Ollier's disease, Maffucci's syndrome, enchondromatosis, their families, and physicians. AAMED is THE source for news and information about bone tumor diseases, research and services for adults and children with Enchondromatosis, Multiple Enchondroma, Ollier's disease, Maffucci's syndrome, and their families.On this site, you'll find links to our quarterly newsletters, message board, pen-pal program for children, latest research information, and much more. We invite interested persons to become part of group." |
| Malignant Hyperthermia | Malignant Hyperthermia Association MHAUS is the only association in the United States dedicated to the control of malignant hyperthermia, a life-threatening genetic disorder. Malignant hyperthermia, an event triggered in susceptible individuals by various anesthetics, strikes fast and without warning, and is a sudden and life threatening condition. |
| Marinesco-Sjögren Syndrome | Marinesco-Sjögren Syndrome Support Group Marinesco-Sjogren Syndrome is a very rare genetic disorder characterized by ataxia (balance and coordination problems), juvenile cataracts, generally some degree of cognitive delay, and very small stature. About 100-200 cases of MSS have been diagnosed worldwide. |
| Massage | Heart Touch Project The Heart Touch Project is dedicated to the training and delivery of compassionate and healing touch to homebound or hospitalized, men, women and children. When children become ill it is often hard for them to understand that painful procedures are a necessary part of making them better or alleviating their suffering. Providing massage in hospitals is a way for children to have a positive touch experience during their hospital stay. Currently, Heart Touch™ volunteers are massaging infants and children who are terminally ill and in hospice care. |
| Mastocytosis | The Mastocytosis Society The Mastocytosis Society's is dedicated to helping patients, caregivers and medical personnel understand Mast Cell Disorders and the impact they have on patient's lives. Systemic Mastocytosis is a neoplastic disease, meaning that it involves new or abnormal cell growth. The cells involved are mast cells, which are normally contained in body tissues. Mast cells release certain mediators, or chemicals, of which one is histamine, into the body in response to certain events. People with Systemic Mastocytosis develop an increase in the number of mast cells, or they develop abnormally shaped mast cells, which may not function properly. In addition, the mast cells fail to die off when they are supposed to, further increasing the total mast cell burden. This die off is called apoptosis. Apoptosis is programmed into normal cells, but in people with mast cell disorders, the mast cells may fail to die off, resulting in an increased number of mast cells in the body. When these mast cells are triggered, they can degranulate, and release their contents all at once, or they can slowly leak their contents in response to a trigger. This can cause many acute and potentially serious symptoms. |
| McCune-Albright Syndrome | The Magic Foundation Major Aspects of Growth In Children (MAGIC) is made up of more than 25,000 families. The majority of us are parents of children with growth disorders and others are affected adults. |
| Meniere's Disease | Menieres.org Meniere's Disease is a disorder of the inner ear associated with a change in the volume of fluid inside a portion of the inner ear called the labyrinth, which includes the membranous labyrinth and the bony labyrinth. |
| Prosper Meniere Society Our primary goal is to promote the academic dissemination and discussion of clinical research data on Ménière's disease and all aspects of inner ear dysfunction, pathophysiology, diagnosis and treatment. | |
| Meningitis | Meningitis Foundation of America We are here to help support sufferers of meningitis and their families, to educate the public and medical professionals about meningitis so that its early diagnosis and treatment will save lives, and to support the development of vaccines and other methods of preventing meningitis |
| Mental Health (general) | Cope-Care-Deal The Annenberg Foundation Trust at Sunnylands created its Adolescent Mental Health Initiative to synthesize and disseminate scientific research on the prevention and treatment of mental disorders in adolescents. The Initiative creates books and Web materials for adolescents on topics including depression, bipolar disorder, anxiety, schizophrenia, and suicide prevention. |
| ARC (formerly Association for Retarded Citizens of the United States) is the country's largest voluntary organization committed to the welfare of all children and adults with mental retardation and their families. | |
| American Association on Mental Retardation AAIDD promotes progressive policies, sound research, effective practices, and universal human rights for people with intellectual and developmental disabilities. | |
| National Mental Health Association Mental Health America is the country’s leading nonprofit dedicated to helping ALL people live mentally healthier lives. | |
| National Alliance for the Mentally Ill NAMI is the nation’s largest grassroots mental health organization dedicated to improving the lives of persons living with serious mental illness and their families who join together to meet the NAMI mission through advocacy, research, support, and education. | |
| Mesothelioma | Mesothelioma Web: "A mesothelioma diagnosis can be overwhelming, and we are here to answer any questions you might have, and to help you take the steps necessary to find the options that are best suited to your individual needs." |
| Mesothelioma Doctor: "In any kind of delicate situation, such as dealing with mesothelioma, receiving valuable information is very important. All the information you need is available on our website. Find a list of doctors and treatment centers that can offer the necessary mesothelioma treatment methods in order to treat your health. All the support you need and even legal help for asbestos victims is one click away." | |
| Metachromatic Leukodystrophy | MLD Foundation The MLD Foundation serves families affected by metachromatic leukodystrophy, a terminal genetic condition. |
| The Evanosky Foundation Metachromatic Leukodystrophy is a rare, genetic, degenerative, neurometabolic disorder that affects approximately one in 40,000 people (primarily children) worldwide. It is an inherited disease, but parents are typically not affected. At present, it is a disease for which there is no cure. Those affected with MLD are deficient in the arylsulfatase-A enzyme, which is responsible for breaking down fatty substances called sulfatides into harmless chemicals. A person with MLD cannot break down these sulfatides, causing them to accumulate in the body. This accumulation causes the destruction of myelin, which is the protective covering on the nerve fibers that enables communication between the nerves and the brain. | |
| Microtia | National Craniofacial Association The National Craniofacial Association has been dedicated to assisting children and adults who have craniofacial disorders resulting from disease, accident, or birth. |
| Migraine | Migraine Action Association The Migraine Action Association bridges the gap between the sufferer and the medical world by providing unbiased information on all aspects of migraine, its causes, diagnosis and treatment. |
| MAGNUM Inc. Migraine Awareness Group: A National Understanding for Migraineurs, was created to bring public awareness utilizing the electronic, print and artistic mediums, to the fact that Migraine is a true biologic neurological disease, to assist Migraine sufferers, their families, and coworkers, and to help improve the quality of life of Migraine sufferers worldwide. | |
| Visual Migraines. "This is a result of blood vessels in the visual part of the brain suddenly spasming, causing bloodflow changes in the region and, hence, visual weirdities. I was most concerned about this because it does impair my vision and, when on the road, this could be a serious problem." | |
| Ocular Migraine. "Ophthalmic (eye) migraines are very common and often painless, although the solo term "migraine" usually brings to mind a severe type of headache." | |
| Migraine Resources. Links to message boards, chat rooms, and information. | |
| Learn Anout Migraine. "Perhaps only a fellow sufferer can really understand what it’s like to live with migraine. Far from being an ordinary headache, migraine is an illness that may take its toll on family and relationships; it may affect your work, your quality of life, even your ability to function." | |
| Mitochondrial Disease | Children's Mitochondrial Disease Network, The Mitochondrial diseases are result from defects in the function of the mitochondrion, cells that fulfill energy requirements of the tissue. |
| United Mitochondrial Disease Foundation Since 1996, the United Mitochondrial Disease Foundation has funded nearly $4 million in research toward a cure and has helped thousands of families through the family support network. UMDF supports scientific collaboration and family networking through international symposia and is building an endowment to sustain research through the millennium. | |
| Mitral Valve Prolapse Synd. | Society for Mitral Valve Prolapse Syndrome In a normal valve the flow of blood goes from the left atrium to the left ventricle. Upon closing it prevents blood from going back into the left atrium. With MVP the flaps don't close evenly. One or both flaps collapse backwards, sometimes allowing a small amount of blood to leak through the valve. Mitral valve prolapse is a genetic disorder and seems to affect women three times more than men. It is one of the most common cardiac findings. |
Support Groups "Mo" through "My"
"Mo" through "My"
| Mobility | Mobility-Advisor.com Mobility-Advisor.com serves as an educational guide on wheel chair options, mobility aids, disability resources, and recreational outlets that enhance the lives of individuals of all ages who need mobility assistance. |
| National Mobility Equipment Dealers Association Known internationally as an organization committed to ensuring quality and professionalism in the manufacturing and installation of safe and reliable mobility equipment in vehicles for drivers and passengers with disabilities. | |
| Wheel Me On The organization promotes activity and unity of all Americans and strives for greater access in society. Web Pages provide education through informative articles to assist everyday living for people with or without disabilities. | |
| Accessible Aviation International, Inc. Accessible Aviation provides access to flight instruction for normally-abled and disabled people. | |
| Mood Disorders | National Mental Health Association Mental Health America is the country’s leading nonprofit dedicated to helping ALL people live mentally healthier lives. |
| Movement Disorders | Worldwide Education and Awareness for Movement Disorders WE MOVE is the Internet's most comprehensive resource for movement disorder information and the hub of movement disorder activities on the web. |
| Moebius Syndrome | Moebius Syndrome Foundation Moebius Syndrome is a rare disorder characterized by lifetime facial paralysis. People with Moebius Syndrome can't smile or frown, and they often can't blink or move their eyes from side to side. In some instances, the syndrome is also associated with physical problems in other parts of the body. The Moebius Syndrome Foundation is a nonprofit organization started by parents and people with Moebius Syndrome. We've come together to do what we can to fight back - by spreading the word among the medical and lay communities and by supporting research into the causes, treatments, and possible cures for Moebius Syndrome. |
| A Life Without Smiles. "Moebius Syndrome is a rare disorder characterized by lifetime facial paralysis. People with Moebius Syndrome can't smile or frown, and they often can't blink or move their eyes from side to side. In some instances, the syndrome is also associated with physical problems in other parts of the body." | |
| Molluscum contagiosum | WebMD - Molluscum contagiosum page: Molluscum contagiosum is a viral skin infection that causes either single or multiple raised, pearl-like bumps (papules) on the skin. |
| Mowat-Wilson Syndrome | MW Parents Mowat-Wilson Syndrome is a mental retardation syndrome usually associated with multiple health defects and recognizable facial properties caused by a genetic mutation. The major health defects include Hirschsprung's Disease, intellectual disabilities, seizures, congenital heart disease, Agenesis of the Corpus Callosum, male genital abnormalities and smaller than normal heads. Facial properties include prominent narrow chin, open mouth, cupped ears with protruding lobes, broad nasal bridge with rounded nasal tip, and wide set eyes. |
| Mucolipidosis | Right Health Mucolipidosis (ML) is a group of inherited metabolic disorders that affect the body's ability to carry out the normal turnover of various materials within cells. Cause In ML, abnormal amounts of carbohydrates or fatty materials (lipids) accumulate in cells. Because our cells are not able to handle such large amounts of these substances, damage to the cells occurs. |
| Mucopolysac- charidoses | National MPS Society The National MPS Society exists to find cures for MPS and related diseases. We provide hope and support for affected individuals and their families through research, advocacy and awareness of these devastating diseases. Mucopolysaccharidoses (MPS) and related diseases are genetic lysosomal storage diseases (LSD) caused by the body's inability to produce specific enzymes. Normally, the body uses enzymes to break down and recycle materials in cells. In individuals with MPS and related diseases, the missing or insufficient enzyme prevents the proper recycling process, resulting in the storage of materials in virtually every cell of the body. As a result, cells do not perform properly and may cause progressive damage throughout the body, including the heart, bones, joints, respiratory system and central nervous system. While the disease may not be apparent at birth, signs and symptoms develop with age as more cells become damaged by the accumulation of cell materials. |
| Multiple Chemically Sensitivity | MCSurvivors Compiled in 1996 in an attempt to organize the growing body of information and resources on multiple chemical sensitivity (environmental illnesses). |
| Multiple Hereditary Exostoses | The MHE Research Foundation The severity of Multiple Hereditary Exostoses varies from family to family and patient to patient and can cause numerous problems, including: compression of peripheral nerves or blood vessels; irritation of tendons and muscles resulting in painand loss of motion; skeletal deformity; short stature; limb length discrepancy; chronic pain and fatigue; early onsetarthritis. General rule of thumb is that when an exostosis / osteochondroma is surgically removed that if it does not grow back within six months, then if sighted again this would be a new exostosis / osteochondroma. |
| Multiple Sclerosis | Multiple Sclerosis Foundation As a predominantly service-based, non-profit organization, our primary mission is to ensure the best quality of life for those coping with MS by providing comprehensive support and educational programs. We strive to help make A Brighter Tomorrow by supporting research into its cause and cure as well as investigations of various medical and complementary treatment options. The scope of our services goes beyond that of a clearinghouse of pamphlets. Our priority is to serve with empathy, resourcefulness, and responsibility. We are here to listen, assist, and empower. |
| Montel Williams MS Foundation The Montel Williams MS Foundation was established to further the scientific study of MS in October 2000. The goals of The Montel Williams MS Foundation are to provide financial assistance to select organizations and institutions conducting the most current research, to increase allocations for research from the federal government, to raise national awareness about MS, and to educate the public. | |
| Myelin Project The Myelin Project aims to accelerate research on myelin repair. Myelin can be destroyed by hereditary neurodegenerative disorders such as the leukodystrophies, and by acquired diseases such as multiple sclerosis. All together, demyelinating diseases affect more than two million people worldwide. | |
| Betaseron Betaseron Multiple Sclerosis Champions of Courage is founded on the philosophy that quality health care, combined with a positive attitude and the support of others, can be empowering forces that enable people with MS to enhance their quality of life. | |
| Consortium of Multiple Sclerosis Centers The preeminent professional organization for Multiple Sclerosis healthcare providers and researchers in North America, and a valued partner in the global MS community. Our core purpose is to maximize the ability of MS healthcare providers to impact care of people who are affected by MS, thus improving their quality of life. | |
| Destination Cure: The Race Against M.S. We are a non-profit organization dedicated to raising money and awareness for Multiple Sclerosis (MS). A prominent researcher in the field has commented that money from Destination Cure is like a speed boat allowing researchers to switch gears quickly and pursue certain areas of interest in their research vs. money granted by larger organizations which is more like a aircraft carrier - while large in size, it does not provide flexibility sometimes needed in research. | |
| National Multiple Sclerosis Society The National MS Society is committed to building a movement by and for people with MS that will move us closer to a world free of this disease. | |
| Multiple System Atrophy | Worldwide Education and Awareness for Movement Disorders WE MOVE is the Internet's most comprehensive resource for movement disorder information and the hub of movement disorder activities on the web. |
| Munchausen Syndrome | Mothers Against Munchausen Allegations Begun in response to the fast growing number of false allegations of Munchausen Syndrome by Proxy. Parents are being accused of making their own children ill. Increasingly, families across America, Britain, Australia, Canada and New Zealand are being destroyed by doctors and other professionals who make false and even malicious allegations against desperate mothers of chronically/critically ill children. |
| Munchausen Syndrome Munchausen Syndrome By Proxy (MSBP) is a form of fabricated or induced illness. This is a very rare form of child abuse in which a carer fakes or actually causes the symptoms of illness in a child who is in their care. It is a variant of Munchausen Syndrome. | |
| Mahalo. A person with Munchausen Syndrome often fakes having a disease or intentionally causes self-harm with the motive of gaining attention and sympathy from others. | |
| Muscular Dystrophy | Muscular Dystrophy Association USA MDA is the world's largest non-governmental sponsor of research seeking the causes of and effective treatments for neuromuscular diseases, sponsoring some 400 research projects annually. |
| Muscular Dystrophy Campaign (UK) The Muscular Dystrophy Campaign is the only UK charity focusing on all muscular dystrophies and allied disorders | |
| Muscular Dystrophy Family Foundation You don't have to face muscular dystrophy alone. Each year, hundreds of people with a neuromuscular disease, and their loved ones, turn to the MDFF for support. We offer comprehensive support programs to ensure clients' medical and emotional needs are taken care of. Our medical directors and case managers will help you through every stage of the process. And, the MDFF is the only agency who's mission is to fund adaptive equipment. From wheelchairs to van lifts to communication devices and beyond, we can help you get the equipment you need to live with No Boundaries. | |
| Facioscapulohumeral Muscular Dystrophy Society The Facioscapulohumeral Muscular Dystrophy Society was organized in 1991 to fund, encourage and promote scientific and clinical research on FSHD. The FSH Society is a world leader in combating muscular dystrophy. FSHD is the second most prevalent adult muscular dystrophy affecting men, women and children. It occurs with a frequency of 1/20,000 in the population and may be three times higher due to misdiagnosed cases. The majority of cases of FSHD are caused by a genetic defect or deletion on chromosome 4. FSHD is genetically autosomal dominant meaning that a child of either sex has a fifty percent chance of inheriting the genetic defect from an affected parent. Thirty percent of new FSHD patients have no prior family history and are a result of a congenital spontaneous genetic mutation. Once present, FSHD is genetically transmissible. | |
| Parent Project Muscular Dystrophy Parent Project Muscular Dystrophy’s mission is to improve the treatment, quality of life and long-term outlook for all individuals affected by Duchenne muscular dystrophy through research, advocacy, education and compassion. | |
| Mutism | Selective Mutism Foundation (SMF) Our mission, as conscientious co-founders, is to promote further research, advocacy, social acceptance, and the understanding of Selective Mutism as a debilitating disorder. |
| Selective Mutism Group We have come together to form a community to help one another and our children. We share experiences and knowledge, fulfilling our mission to promote public awareness, to research and educate about Selective Mutism, and to speak out for our children who can’t speak for themselves. | |
| Myalgic Encephalomyelitis | National ME/FM Action Network is a Canadian organization dedicated to advancing the recognition and understanding of Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME/CFS) and Fibromyalgia Syndrome (FMS) through education, advocacy, support, and research.The Network seeks to effect positive change in the attitudes, policies, and practices of government, medical governing bodies, business, the media, and the general public. |
| Myasthenia Gravis | Myasthenia Gravis Foundation of America (MGFA) The Myasthenia Gravis Foundation of America (MGFA) is the only national volunteer health agency dedicated solely to the fight against myasthenia gravis. Myasthenia Gravis comes from the Greek and Latin words meaning "grave muscular weakness." The most common form of MG is a chronic autoimmune neuromuscular disorder that is characterized by fluctuating weakness of the voluntary muscle groups. The prevalence of MG in the United States is estimated to be about 20/100,000 population. However, MG is probably under diagnosed and the prevalence may be higher. Myasthenia Gravis occurs in all races, both genders, and at any age. MG is not thought to be directly inherited nor is it contagious. It does occasionally occur in more than one member of the same family. |
| Myelodysplastic Syndromes | Myelodysplastic Syndromes Foundation The MDS Foundation is a multi disciplinary, international organization devoted to the prevention, treatment, and study of the myelodysplastic syndromes. The organization is based upon the premise that international cooperation will accelerate the process leading to the control and cure of these diseases. |
| Myoclonus | Worldwide Education and Awareness for Movement Disorders WE MOVE is the Internet's most comprehensive resource for movement disorder information and the hub of movement disorder activities on the web. |
| Myositis | Myositis Association of America The mission of The Myositis Association is to find a cure for inflammatory and other related myopathies, while serving those affected by these diseases. Myositis is the general term used to describe swelling of the muscles. Injury, infection, and even exercise can cause muscle swelling. The swelling will go away once the injury or infection is treated, or once you rest your muscles from exercise. Certain medicines can also cause some muscle swelling that goes away once you stop taking the medicine. |
| Myositis Support Group This is the largest Myositis Support Group on the Internet offering a place to learn more about the mysteries of a Myositis disease and meeting other individuals who have been diagnosed with one of the diseases: | |
| Myotonic Dystrophy | International Myotonic Dystrophy Organization Myotonic dystrophy is a rare disease with an incidence of about one in 8000. Myotonic Dystrophy is known as a multisystem disease. That means that the various types of tissue and organs are affected. Thus, the disease may affect the eyes, heart, and muscles. |
| Myotubular Myopathy | Myotubular Myopathy Resource Group Myotubular Myopathy is a family of rare, inherited diseases. Manifesting itself as a defect in the cell structure of voluntary muscles, it causes low muscle tone and, in most forms, is usually apparent at birth. Affected children have diminished respiratory capacity and are often partially or totally ventilator dependent. |
| Myeloproliferative Disease | Myeloproliferative Disease Support. Anyone - patient, family member, or health professional, is welcome to join our growing list of subscribers. Our archives are available for you to research information. |
Page Index
Alphabetical List: |
Quick Links to selected categories: |
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Support Group Home Page Includes directions, hints for use, etc. |
See the "Medical Information" page for Medical Definitions, Pharmaceuticals and Home Remedies, Advocacy Groups, Medical Articles | ||
| Have We Missed a Support Group or Ailment? We are constantly looking for more information and more links. Please help us improve our site and service. The Internet had millions of web pages dedicated to medical conditions and support groups; we can only sample a few of them. If you know any sites we should include write to suggestions@slightlycreaky.com | |||
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