Support Groups

How to Use -- Contents

Alphabetical List by Ailment

This page has general information and links to all Support Group pages.

Updated March 9, 2008

Many support groups are named for people, are generalized and provide assistance for several related conditions, or are otherwise difficult to interpret. This page provides links alphabetically based upon specific ailments. Please scroll down, use the index link, or use your browser's "find" or "search" feature to get the the area you are seeking.

In addition to support groups, we include links to informational sites on these conditions.

Links to Support Group pages:

Updates

We need your help

Although this list was complete on the date listed, many support groups change names or even close terminate their services. New ones start weekly. Should you discover a bad link or wish to suggest that we add one, please contact suggestions@slightlycreaky.com.

This listing is the result of more than 500 hours of research. It is the property of Slightly Creaky and may not be reproduced in any form. Every attempt has been made to provide an accurate description of each organization.

For General Medical Links

Including dictionaries and encyclopedias

See the Medical Information page for:

  • Medical Definitions
  • Pharmaceuticals and Home Remedies
  • Generalized Support & Information Sites
  • Organizations Supporting Many Ailments
  • Advocacy Groups

For Medical Articles

See the "Medical & Health" main page. Here we have articles submitted by viewers and volunteers as well as features about new links.

Important Information

Several conditions could be classified by more than one title. Here is a list of our "see" categories

Blindness - Eyes       see Vision

Antiphospholipid Antibody Syndrome –
                  see Hughes Syndrome. 

CHF (Chronic Heart Failure)
                  see Heart Failure

Edward's Syndrome   see Trisomy

Legg-Calve-Perthes Disease
                  see Perthes Disease

Paratuberculosis     see Crohn's Disease

Explanation of Procedure

Several Examples

The first column displays the condition or ailment. In the second column is a link to the specific sites as well (where possible) as an annotated description or a quotation from the site. Usually this quote is part of the organization's mission statement. Use the link to go directly to the Web site. On occasion where the support group is part of a larger web site, there will be links to the home page. See examples below.
Example One This condition has only one support group.
Aicardi Syndrome Aicardi Syndrome Foundation Our mission is to improve the diagnosis and treatment of Adult Polyglucosan Body Disease, support individuals and families affected by the disease and increase awareness of APBD among health professionals and the public.
 
Example Two This condition has more than one support group.
Batten Disease Daily Strength DailyStrength.org is the most comprehensive health network of people sharing their advice, treatment experiences, and support. Keep a wellness journal, read members’ stories, and chat with new friends with over 500 support groups.
Batten Disease Support and Research Association Also known as Spielmeyer-Vogt-Sjogren-Batten Disease, it is the most common form of a group of disorders called Neuronal Ceroid Lipofuscinoses. Over time, affected children suffer mental impairment, worsening seizures, and progressive loss of sight and motor skills. Eventually, children with Batten Disease/NCL become blind, bedridden, and unable to communicate and presently is always fatal.
 
Example Three This support group either has no annotation available or the annotation has not yet been written.
Atherosclerosis International Atherosclerosis Society

 

Available Connections

We attempt to make site navigation easy. Throughout the Support Group pages you will find links back to the index so that you may select a different alphabetical area or a different Slightly Creaky Support Group page.
>> Return to alphabetical index <<

Use Link to go directly to the Support Group Site

 

"See" information

Several conditions could be classified by more than one title. Here is an example of our "see" links. In this case you will be brought to the top of the "T - Z" page where you can use the "quicklink" in the index to go directly to the Vision section.
Blindness – see Vision

 

Links

This is how a section will look:

Use Link to go directly to the Web site. In cases where there are many activities in a category the link will take you to a supplemental Slightly Creaky page.

"A"

Abdominal Aortic Aneurysm Legs For Life Legs For Life is a national screening program for Peripheral Arterial Disease (PAD), Abdominal Aortic Aneurysm (AAA), Carotid/Stroke, and Venous Disease.
Type of illness or condition. Blue is clickable link. Most of the descriptions come directly from the site. On occasion the site changes. If you discover a problem, please let us know by writing to suggestions@slightlycreaky.com


Links will open a new web window or tab so that you will still have the Slightly Creaky page opened for further research.
 
>>Return to alphabetical index<<

Use Link to go directly to the Support Group Site

At the end of each section, and occasionally in the middle, there will be a link back to the top of the page so you can access the menus.

 

Pending Area

The obvious legal statement.

The folks at Slightly Creaky are volunteers. None of us get any salary or compensation in any form. We are not a corporation, just a few folks working out of our houses. If anything on this site bothers you, if you notice mistakes, please let us know.

While we do maintain editorial rights, things slip passed, especially on the message boards. The submitted columns and news articles, as well as the postings on the message boards, belong to the contributor(s), not to the Slightly Creaky team. We are simply a vehicle bringing you information to the best of our ability.

Be sure to read our complete Legal Information and Policies