Groups R, S

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Slightly Creaky does extensive research to find the links you would most likely need and provides them for you in an easy-to-find format. You can access the various categories from any of our web pages using the top or side menus. Each category has generalized headings, followed by more specific ones.

Alphabetical List by Ailment

Updated March 9, 2008

Many support groups are named for people, are generalized and provide assistance for several related conditions, or are otherwise difficult to interpret. This page provides links alphabetically based upon specific ailments. Please scroll down, use the index link, or use your browser's "find" or "search" feature to get the the area you are seeking.

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Support Groups "R"

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"R"

Quick Link:      Restless Legs Syndrome

Raynaud's Disease Raynaud's & Scleroderma Association   (UK)  Raynaud's is a common condition in which blood is prevented from reaching the extremities of the body, mainly the fingers and toes, on exposure to the cold or any slight change in temperature. A small number of people who have Raynaud's also develop scleroderma, a disease which affects the connective tissue.  Scleroderma means hard skin but the hardness is not limited to the skin - the internal organs and their blood supply may become damaged. Scleroderma can be devastating not only for the person who has the condition but also for the families concerned. We offer a very personal service, always available to answer questions, offer advice, reassurance and support. Further advice can be obtained through the nurse advice lines available to members and funded by the Association.   
 Raynaud’s Association  The Raynaud’s Association is here to help. It was created primarily to raise awareness of this disorder: to help people identify their condition and to seek medical intervention to determine whether or not an underlying – potentially serious – medical condition exists. In addition, the mission of the Raynaud’s Association is to provide support, resources and credible information to Raynaud’s sufferers. 
Recombinant 8 Syndrome Recombinant 8 Syndrome Family Support Group   Also called San Luis Valley Syndrome. We wanted a place for anyone affected by this genetic disorder to be able to discuss concerns, share stories, and educate one another.   
Rehabilitation Rehabnet     Your body is a temple. You must do all that you can to keep it holy. Here we can help you find the information you need to keep your body and mind healthy and pure
Atlanta VA Rehab R&D Center     Website of the Atlanta VA Rehab R&D Center with information for aging Veterans with disabilities and those acquiring disabilities as they age, including a variety of interesting links.
The Office of Special Education and Rehabilitative Services    The Office of Special Education and Rehabilitative Services supports programs that assist in educating children with special needs, provides for the rehabilitation of youth and adults with disabilities, and supports research to improve the lives of individuals with disabilities.
Reflex Sympathetic Dystrophy Syndrome American RSDHope      The American RSDHope Organization is a non-profit organization dedicated to increasing awareness of Reflex Sympathetic Dystrophy.
Reflex Sympathetic Dystrophy Syndrome Assoc. Of America To promote public and professional awareness of Reflex Sympathetic Dystrophy Syndrome, a chronic neurological syndrome characterized by: severe burning pain, pathological changes in bone and skin, excessive sweating, tissue swelling, and extreme sensitivity to touch.
Reiter's Syndrome Reiter's Information & Support Group   Spondyloarthropathies are a family of long-term (chronic) diseases of joints. These diseases occur in children and adults. They include ankylosing spondylitis, Reiter's syndrome, psoriatic arthritis, and joint problems associated with inflammatory bowel disease. Although all spondyloarthropathies have different symptoms and outcomes, they are similar in that all of them: usually involve the attachments between your low back and the pelvis and affect areas around the joint where your ligaments and tendons attach to bone such as at the knee or hip.
Respiratory Distress Syndrome Respiratory Distress Syndrome Foundation    Respiratory Distress Syndrome is a common, highly fatal complication that follows a variety of illnesses, traumas and surgeries. Many medical experts now consider RDS to be one of the largest life-taking syndromes in the world. RDS is found in every hospital, trauma unit, emergency room and neo-natal unit throughout the world. Some estimates have as many as 5,000,000 people affected by RDS worldwide. The syndrome has an 85% mortality rate.            
Restless Legs Syndrome Restless Legs Syndrome Foundation    Diagnosis of RLS include: a strong urge to move your legs which you may not be able to resist, the need to move is often accompanied by uncomfortable sensations; symptoms start or become worse when you are resting; Symptoms get better when you move your legs; symptoms are worse in the evening especially when you are lying down. Activities that bother you at night do not bother you during the day.
Worldwide Education and Awareness for Movement Disorders WE MOVE is the Internet's most comprehensive resource for movement disorder information and the hub of movement disorder activities on the web. 
Retinitis Pigmentosa Retina International     Seeking a cure for Retinitis Pigmentosa Macular Degeneration, Usher Syndrome and allied retinal distrophies
Rett Syndrome Rett Syndrome Association UK       Rett syndrome is a complex neurological disorder. It affects mainly girls. Although present at birth, it becomes more evident during the second year.  It could occur in any family at any time.  Something goes wrong with the genetic makeup of the cells which become the baby. Whilst there is variability in the severity of the disorder, most people with Rett syndrome are profoundly and multiply disabled and highly dependent on others for all their needs throughout life.
Rett Angel    Children with Rett Syndrome appear to develop normally until 6 to 18 months of age. They then enter a period of regression, losing speech and hand skills they had acquired. Most children develop seizures, repetitive hand movements, irregular breathing and motor-control problems. A slowing of the rate of head growth also becomes apparent. Most researchers agree that RS is a developmental disorder rather than a progressive, degenerative disorder. The girls can live to adulthood, but most never regain the ability to use their hands or to speak.
Rett Syndrome Research Foundation    The RSRF is focused aggressively and exclusively on biomedical research would accelerate the discovery of treatments and a cure for this devastating disorder.         
Worldwide Education and Awareness for Movement Disorders WE MOVE is the Internet's most comprehensive resource for movement disorder information and the hub of movement disorder activities on the web. 
Reye's Syndrome National Reye's Syndrome Foundation  Reye's Syndrome, a deadly disease, strikes swiftly and can attack any child or adult without warning.  All body organs are affected, with the liver and brain suffering most seriously.  While the cause and cure remain unknown, research has established a link between Reye's Syndrome and the use of aspirin and other salicylate-containing medications. 
Rheumatoid Arthritis National Rheumatoid Arthritis Society UK NRAS provides support and information for people with Rheumatoid Arthritis and Juvenile Idiopathic Arthritis, their families, friends and carers, and health professionals with an interest in Rheumatoid Arthritis
Rheumatoid Disease Foundation, The    Rheumatoid Arthritis is not one single disease, but a catch-all diagnosis for many different causes, over 190 known different diseases, and probably more. Many are curable!    
Right Ventricular Dysplasia Andy Stoppelman Fund   Right Ventricular Dysplasia is an important cause of ventricular arrhythmias in children and young adults. It is seen predominantly in males, and 30-50% of cases have a familial distribution. It is usually inherited.
ARPKD/CHF Alliance  The Multidisciplinary Study of Right Ventricular Dysplasia is a multidisciplinary, multicenter, collaborative study to investigate the cardiac, clinical, and genetic aspects of arrhythmogenic right ventricular dysplasia.
Ring Chromosome 20 Syndrome Ring Chromosome 20 Foundation  (UK) Ring Chromosome 20 syndrome is one of a number of chromosomal disorders associated with epilepsy. Ring Chromosome 20 syndrome occurs when the arms of one of the pair of chromosome 20s which are present in each cell fuse to form a ring during pre-natal development. 
Rocky Mountain Spotted Fever Lyme Disease Foundation, Inc.   The Lyme Disease Foundation is the premier nonprofit dedicated to finding solutions for tick-borne disorders. Realizing the ability to find solutions involves a multi-discipline effort, the LDF includes the four cornerstones of progress (businesses, patients, government, and the medical community) to work together to find solutions to tick-borne disorders.  (Also has information about Rockey Mountain Spotted Fever.)
Rombergs Syndrome Rombergs Connection   Romberg syndrome is a rare disorder characterized by slowly progressive degeneration (atrophy) of the soft tissues of half of the face. Some individuals may experience distinctive changes of the eyes and hair; and neurological abnormalities including episodes of seizures and of severe pain in tissues supplied by the fifth cranial nerve including the mouth, cheek, nose, and/or other facial tissues.
Rosacea Daily Strength DailyStrength.org is the most comprehensive health network of people sharing their advice, treatment experiences, and support. Keep a wellness journal, read members’ stories, and chat with new friends with over 500 support groups.
Rubinstein-Taybi Syndrome RTS   Rubinstein-Taybi Syndrome is a rare condition, affecting about 1 in 125,000 people. Most patients have a gene mutation, resulting in an abnormal CREB binding protein. About 10% of patients, typically with more severe problems, have an outright deletion of the gene and they do not make any of the protein. Most cases are sporadic and likely due to a new mutation occurring during fetal development, which was not passed on by either parent. However, in some cases, it is inherited in an autosomal dominant fashion, which means that if one parent passes on the defective gene, the child will be affected. The classic feature is broad thumbs and great toes, but typically there is also short stature, unusual face, low-set ears, port-wine-stain, undescended testicles in the male, and downward slant of the eyes
Special Friends Foundation  The Special Friends Foundation is dedicated to providing information and resources to individuals with RTS and their families.  The Foundation provides assistance to cover expenses incurred due to RTS that are not covered by medial insurance or Medicaid.        
Rubinstein-Taybi Parent Group  According to the medical literature, in some cases, individuals with Rubinstein-Taybi syndrome may have complications (e.g., respiratory distress and/or irregular heart beats [cardiac arrythmias]) associated with a certain muscle relaxant (succinlycholine) and certain anesthesia.. Any situations requiring the administration of anesthesia should be closely monitored by skilled professionals.
Russell-Silver Syndrome The Magic Foundation Major Aspects of Growth In Children  (MAGIC)  is made up of more than 25,000 families. The majority of us are parents of children with growth disorders and others are affected adults.
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Support Groups "Sa - Sl"

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"Sa" - "Sl"

Saethre-Chotzen syndrome National Craniofacial Association  The National Craniofacial Association has been dedicated to assisting children and adults who have craniofacial disorders resulting from disease, accident, or birth.
Sanfilippo Sanfilippo Children's Research Foundation  There is a continuous process in the body of replacing used materials and breaking them down for disposal. Children with Sanfilippo disease are missing an enzyme which is essential in cutting up the used mucopolysaccharides. The incompletely broken down mucopolysaccharides remain stored in cells in the body causing progressive damage. Babies and small children may show little sign of the disease but, as more and more cells become damaged, symptoms start to appear.
Cure for Kirby, A    Children with Sanfilippo are missing an essential enzyme that breaks down a complex body sugar called heparin sulfate.  This sugar slowly builds in the brain, stopping normal development and causing hyperactivity, sleep disorders, loss of speech, dementia and typically death before adulthood. 
Sarcoidosis National Sarcoidosis Resource Center    Sarcoidosis is a chronic, multisystem disorder of an unknown etiology characterized by the accumulation of T-lymphocytes and mononuclear phagocytes, nonsecreting epithelial granulomas and derangements of the normal tissue architecture in affected organs. All parts of the body can be affected, but the organ most affected is the lung. Involvement of the skin, eye and lymph nodes is also common
Sarcoidosis Family Foundation   Sarcoidosis is a disease which occurs when areas of inflammation grow in different organs of the body. Very small growths called granulomas are associated with it and occur in the lungs, lymph nodes, eyes, skin, and spleen. These growths may clear up on their own or cause permanent damage.
Schizophrenia Nat. Alliance for Research on Schizophrenia & Depression NARSAD is the world's largest donor-supported organization for research on psychiatric disorders
National Mental Health Association    Mental Health America is the country’s leading nonprofit dedicated to helping ALL people live mentally healthier lives.
National Alliance for the Mentally Ill    NAMI is the nation’s largest grassroots mental health organization dedicated to improving the lives of persons living with serious mental illness and their families who join together to meet the NAMI mission through advocacy, research, support, and education.       
Sciatica Daily Strength DailyStrength.org is the most comprehensive health network of people sharing their advice, treatment experiences, and support. Keep a wellness journal, read members’ stories, and chat with new friends with over 500 support groups.
Scleroderma Scleroderma Foundation   The Scleroderma Foundation is the leading non-profit supporter of scleroderma research in the United States, allotting more than $1 million annually to find the cause of and cure for scleroderma. Since 1989, nearly $12 million in research funds has been allotted. To promote education of the disease, the foundation facilitates health and professional seminars, produces and distributes literature and conducts publicity campaigns. To help support the 300,000 people living with scleroderma, the foundation offers peer counseling, mutual support programs, and physician referrals.
Juvenile Scleroderma Network     Scleroderma is a connective tissue disease involving skin, blood vessels and the immune system. In its systemic form, internal organ involvement can occur.  Our mission is to provide emotional support and educational information to parents and their children living with juvenile scleroderma; to support pediatric research to identify the cause and the cure for juvenile scleroderma; to enhance the public's awareness of juvenile scleroderma and related diseases.       
International Scleroderma Network  We provide stellar research, support, education and awareness for scleroderma and related illnesses.
Raynaud's & Scleroderma Association  (UK)  Raynaud's is a common condition in which blood is prevented from reaching the extremities of the body, mainly the fingers and toes, on exposure to the cold or any slight change in temperature. A small number of people who have Raynaud's also develop scleroderma, a disease which affects the connective tissue.  Scleroderma means hard skin but the hardness is not limited to the skin - the internal organs and their blood supply may become damaged. Scleroderma can be devastating not only for the person who has the condition but also for the families concerned. We offer a very personal service, always available to answer questions, offer advice, reassurance and support. Further advice can be obtained through the nurse advice lines available to members and funded by the Association.
Scoliosis Scoliosis Support Group    Scoliosis is a term meaning crookedness in Greek.  It is a side-to-side curvature of the spine. 
ScoliosisLife.net    Scoliosislife.net offers a place for all those who can relate to Scoliosis. May it be family, doctors, friends or the person itself who has it. Here we can all come together to talk about how our lives are affected by it, ask questions, comments and share stories and other interesting stuff all and around Scoliosis in any form or shape.
iScoliosis.com    Scoliosis is a condition which affects the spines of many children, teenagers and adults. The human spine features many natural curvatures which help our bodies to move and be flexible.
Seasonal Affective Disorders National Mental Health Association    Mental Health America is the country’s leading nonprofit dedicated to helping ALL people live mentally healthier lives.
Self Injury National Mental Health Association    Mental Health America is the country’s leading nonprofit dedicated to helping ALL people live mentally healthier lives.
Sensory Processing Disorders Sensory Processing Disorder Network   Sensory Processing Disorder is a complex disorder of the brain that affects developing children. Children with SPD misinterpret everyday sensory information, such as touch, sound, and movement. Depending on which type of SPD a child has, he may feel as if he is overwhelmed with information, he may seek out intense sensory experiences, or he might have other symptoms. This can lead to behavioral problems, difficulties with coordination, and other issues.
Separation Anxiety Daily Strength DailyStrength.org is the most comprehensive health network of people sharing their advice, treatment experiences, and support. Keep a wellness journal, read members’ stories, and chat with new friends with over 500 support groups.
Sepsis

 

Surviving Sepsis   Sepsis can be defined as the body's response to an infection. An infection is caused by microorganisms or "germs" (usually bacteria) invading the body, and can be limited to a particular body region (e.g., a tooth abscess) or can be widespread in the bloodstream ("blood poisoning").    
International Sepsis Forum   The International Sepsis Forum is a unique collaborative effort between industry and academia. It is the first initiative to focus solely on management of patients with severe sepsis. While sepsis and its sequelae are still associated with high morbidity and mortality rates, new data on patient management are emerging that may ultimately significantly improve the current situation.         
Septo Optic Dysplasia The Magic Foundation Major Aspects of Growth In Children  (MAGIC)  is made up of more than 25,000 families. The majority of us are parents of children with growth disorders and others are affected adults.
Shingles    (Herpes Zoster) Medconsumer.info: Herpes Zoster    Shingles, also called herpes zoster or zoster, is a painful skin rash caused by the varicella zoster virus (VZV). VZV is the same virus that causes chickenpox. After a person recovers from chickenpox, the virus stays in the body. Usually the virus does not cause any problems; however, the virus can reappear years later, causing shingles.
Short Rib Polydactyly Syndrome Short Rib Polydactyly Syndrome Support Network   Short Rib Polydactyly Syndrome is a description for a lethal category of bone growth disorders known as skeletal dysplasias or, more commonly, dwarfism. SRPS is generally characterized by short ribs, a bell-shaped torso, and short measurements of the long bones (femur and humerus). However, not all cases of SRPS demonstrate polydactyly, the presence of extra fingers and toes. All forms of SRPS are lethal to newborns.
Shwachman Diamond Syndrome Shwachman Diamond Syndrome Foundation            Shwachman-Diamond Syndrome is a rare disease which mainly involves the pancreas, bone marrow and skeleton, but other organs may also be affected. Next to Cystic Fibrosis, it is the most common cause of pancreatic insufficiency in children. For that reason, it is sometimes confused with Cystic Fibrosis; but in children with Shwachman-Diamond Syndrome the sweat test is normal. People with Shwachman-Diamond Syndrome usually have a decreased ability to digest food because the cells of the pancreas, in which digestive enzymes are produced, do not work properly. Additionally, there is usually a decreased number of at least one kind of blood cells. In some patients, there is a decrease in all kinds of blood cells. Most frequently, this decrease occurs in the number of neutrophils, the blood cell that is necessary to fight bacteria infections.
Shy-Drager/Multiple System Atrophy Shy-Drager/Multiple System Atrophy Support Group             Multiple system atrophy is a rare neurodegenerative disease marked by a combination of symptoms affecting movement, blood pressure, and other body functions; hence the label "multiple system" atrophy.
Sickle Cell Anemia American Sickle Cell Anemia Association   The organization currently provides a wide range of services to those individuals and families with either sickle cell trait or variants of the disease itself.
Sickle Cell Disease Association of America (SCDAA)             Aims to promote finding a universal cure for Sickle Cell Disease while improving the quality of life for individuals and families where Sickle Cell-related conditions exist.   
Sickle Cell Information Center   The mission of this site is to provide sickle cell patient and professional education, news, research updates and world wide sickle cell resources. It is the mission of our organizations to provide compassionate care, education, counseling, and research for patients with sickle cell disease. It is our mission to help break the sickle cycle.
Sickle Cell Society of Canada    The Sickle Cell Society believes that every sickle cell sufferer has the right to quality care. This can only be achieved if funding is made available to educate health carers and other professionals about the condition.        
Save Babies Through Screening Foundation, Inc.    Its mission is to improve the lives of babies by working to prevent disabilities and early death resulting from disorders detectable through newborn screening. Without proper screening affected children will likely suffer mental retardation, physical disability or even death. Most affected children can lead normal, healthy lives when diagnosed and started on treatment early.
Iron Disorders Institute    An iron disorder occurs when iron is out of balance in the human body.
Sjogren's Syndrome Sjogren's Syndrome Foundation    Sjögren's syndrome is a chronic disease in which white blood cells attack the moisture-producing glands. The hallmark symptoms are dry eyes and dry mouth, but it is a systemic disease, affecting many organs and may cause fatigue. It is one of the most prevalent autoimmune disorders, striking as many as four million Americans.
Marinesco-Sjögren Syndrome Support Group             Marinesco-Sjogren Syndrome is a very rare genetic disorder characterized by ataxia (balance and coordination problems), juvenile cataracts, generally some degree of cognitive delay, and very small stature. About 100-200 cases of MSS have been diagnosed worldwide.  
Skin Issues Foundation for Ichthyosis & Related Skin Types            Ichthyosis is a term for a large group of different scaling skin disorders. Because the term refers to a large group, the disorders are referred as the ichthyoses. Most of the problems in the ichthyoses occur in the epidermis, the top layer of the skin that forms a barrier between our bodies and the outside world.
Pickaderms    Pickaderms is for people who have skin picking problems on any part of the body, and includes nail and cheek biting. This disorder is more common than you think. Pickaderms is an unlisted, private, restricted list open only to people (and parents of children) who pick or bite at their skin.        
Sleep National Sleep Foundation    You hear the advice that people need eight hours of sleep, but does that apply to every person? What about children, teens and older people? Many people seem to get by on less than eight so...
American Sleep Apnea Association    The American Sleep Apnea Association is the only non-profit organization dedicated to educating the public about sleep apnea and to serving people with this common disorder.  We are dedicated to reducing injury, disability, and death from sleep apnea and to enhancing the well-being of those affected by this common disorder. The ASAA promotes education and awareness, voluntary mutual support groups, research, and continuous improvement in care.           
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Support Groups "Sm" - "Sz"

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"Sm" - "Sz"


Quick Links:      Spinal Cord Injury     Stroke

Smith-Magenis Syndrome Parents & Researchers Smith-Magenis Syndrome   Smith-Magenis syndrome is a chromosomal disorder caused by a missing piece of genetic material from chromosome 17. Common features include: infant feeding problems, low muscle tone, developmental delay, variable levels of mental retardation, early speech/language delay, middle ear problems, skeletal anomalies and decreased sensitivity to pain. The syndrome also includes a distinct pattern of neurobehavioral features characterized by chronic sleep disturbances, arm hugging/hand squeezing, hyperactivity and attention problems, prolonged tantrums, sudden mood changes and/or explosive outbursts and self-injurious behaviors.      
Social Interaction The Bubel/Aiken Foundation    Our grants provide much needed funding to qualified programs serving families in need of funds to assist individuals in life skills and one-to-one social skills, but more importantly, to programs that provide social interaction with their peers. We will fund the development of curricula and the necessary training aimed at achieving full inclusion in the educational, employment, and recreational settings.         
Sotos Syndrome Sotos Syndrome Support Association    Sotos Syndrome, also known as cerebral gigantism because of the distinctive head shape and size, is a genetic condition causing physical overgrowth during the first years of life. Ironically, this rapid physical development is often accompanied by delayed motor, cognitive and social development. Muscle tone is low, and speech is markedly impaired.        
Spastic Paraplegia Spastic Paraplegia Foundation   SPF is the only organization dedicated to two groups of neurodegenerative disorders called Spastic Paraplegia and Primary Lateral Sclerosis These spinal cord diseases cause progressive weakness and spasticity in the muscles in the lower body. People generally go from difficulty walking to needing a cane and eventually a wheelchair. In PLS, the disease also affects muscles in the upper body, causing problems with the arms, voice and swallowing. Many people with HSP or PLS also have pain, balance disturbance, or bladder or bowel problems. Very rare forms of Spastic Paraplegia can cause retardation, dementia, epilepsy, vision problems, skin problems or other neurological problems.
Worldwide Education and Awareness for Movement Disorders    WE MOVE is the Internet's most comprehensive resource for movement disorder information and the hub of movement disorder activities on the web. 
Spasmodic Torticollis National Spasmodic Torticollis Association    Spasmodic Torticollis is a painful and debilitating neurological movement disorder.  It is also known as "Cervical Dystonia." and is referred to by many as "torticollis."  Approximately 3 in every 10,000 people - about 90,000 people in the United States - are known to suffer from ST.  This movement disorder is caused by a dysfunction of the brain. The symptoms are caused by intermittent or sustained contractions of the muscles around the neck which control the position of the head. This causes the head to lean to one side, or be pulled forward or backward. The shoulders may also be uneven and some patients experience tremors in the head or arms. ST is usually accompanied by constant and extreme pain. 
Spasticity Worldwide Education and Awareness for Movement Disorders WE MOVE is the Internet's most comprehensive resource for movement disorder information and the hub of movement disorder activities on the web. 
Spina Bifida Spina Bifida Association      Over 250,000 Americans are in the Spina Bifida Community. An estimated 70,000 people in the United States are currently living with spina bifida, the most common permanently disabling birth defect.  Spina Bifida is a neural tube defect that happens in the first month of pregnancy when the spinal column doesn’t close completely.
Spinal Cord Injury Foundation for Spinal Cord Injury Prevention    As part of its ongoing prevention efforts, the FSCIPCC has proposed a "Wipe-out Spinal Cord Injury" program with a goal of reducing spinal cord injuries by 10% annually.
Back Up Trust   The Back-Up Trust is a national charity that supports people; young or old with spinal cord injury. We run a variety of services that encourage self-confidence, independence and motivation following a traumatic life changing incident resulting in spinal cord injury. We also support friends, families and colleagues of all those who are affected to encourage integration and promote disability awareness and collaboration.
National Spinal Cord Injury Association   Founded in 1948, the National Spinal Cord Injury Association is the nation's oldest and largest civilian organization dedicated to improving the quality of life for hundreds of thousands of Americans living with the results of spinal cord injury and disease (SCI/D) and their families. This number grows by thirty newly-injured people each day.
Mike Utley Foundation     On November 17, 1991, Detroit Lions' offensive guard Mike Utley was paralyzed during an NFL game. His courageous "THUMBS UP" gesture has become the national symbol of Mike's fighting spirit.
United Spinal Association     Our mission is to provide expertise, create access to resources and strengthen hope thereby enabling people with spinal cord injuries and disorders (SCI/D) to fulfill their potential as active members of their communities.
Spinal Muscular Atrophy Families of SMA    Spinal Muscular Atrophy (SMA) is a motor neuron disease. The motor neurons affect the voluntary muscles that are used for activities such as crawling, walking, head and neck control, and swallowing. It is a relatively common "rare disorder": approximately 1 in 6000 babies born are affected, and about 1 in 40 people are genetic carriers. SMA affects muscles throughout the body, although the proximal muscles (those closest to the trunk of one’s body - i.e. shoulders, hips, and back) are often most severely affected. Weakness in the legs is generally greater than in the arms. Sometimes feeding and swallowing can be affected. Involvement of respiratory muscles (muscles involved in breathing and coughing) can lead to an increased tendency for pneumonia and other lung problems.
Stevens Johnson Syndrome Stevens Johnson Syndrome Foundation   Almost any medication including over-the-counter drugs, such as Ibuprofen, can cause SJS. Most commonly implicated drugs are anti-convulsants, antibiotics (such as sulfa, penicillin and cephalosporin) and anti-inflammatory medications. 
Stickler Syndrome National Craniofacial Association  The National Craniofacial Association has been dedicated to assisting children and adults who have craniofacial disorders resulting from disease, accident, or birth.
Stickler Involved People   Stickler syndrome is a connective tissue disorder, a genetic malfunction in the tissue that connects bones, heart, eyes, and ears. This disorder is associated with problems of vision, hearing, bone and joint , facial and cleft palate, and heart.
Stroke American Stroke Association    Stroke impacts a person’s body, behavior, and communication. But no one has to go through it alone. The ASA is here to provide information and support and to connect you with others, helping you make the most of your recovery.
National Stroke Association    Stroke is the third leading cause of death in America and the No. 1 cause of adult disability. 90% of strokes are preventable.   
Pediatric Stroke Network    Childhood Stroke survivors can have a host of disabilities caused by their stroke.  These can include Epilepsy (Seizures), Hemiplegia - a form of Cerebral Palsy, Hemiparesis, Hypotonia, Hemiplegic Cerebral Palsy, speech and language difficulties, vision deficits along with learning disabilities and they may require speech therapy, occupational therapy, medications, special education, orthotics and more.  Early diagnosis and intervention is the key to our children having as close to an average life as possible. The earlier therapy is started, the better chance their disabilities will be less severe.           
Sturge-Weber Syndrome Sturge-Weber Foundation   Sturge-Weber Syndrome (encephelotrigeminal angiomatosis) is a congenital, non-familial disorder of unknown incidence and cause. It is characterized by a congenital facial birthmark and neurological abnormalities. Other symptoms associated with Sturge-Weber can include eye and internal organ irregularities. Each case of Sturge-Weber Syndrome is unique and exhibits the characterizing findings to varying degrees.
Stuttering National Stuttering Association    The National Stuttering Association (NSA) is the largest self-help support organization in the United States for people who stutter. Our mission is to bring "hope, dignity, support, education, and empowerment to children and adults who stutter, their families, and the professionals who serve them."
Stuttering Foundation of America, The     The Stuttering Foundation provides free online resources, services and support to those who stutter and their families, as well as support for research into the causes of stuttering. We are the first and the largest nonprofit charitable organization in the world working towards the prevention and improved treatment of stuttering, reaching over a million people annually.
Friends: The National Association of Young People Who Stutter     FRIENDS is a national organization created to provide a network of love and support for children and teenagers who stutter, their families, and the professionals who work with them. 
International Stuttering Association    While spoken word is taken for granted by most, the use of spoken language is challenging for millions of people who stutter around the world. It is estimated that approximately 1%, or 60 million, of the 6 billion people with whom we share this world, stutter. For many of these individuals, daily communication is a constant struggle. For many of them, speech does not open doors but closes them for interpersonal, academic and professional development and fulfilment.
Sudden Arrhythmia Death Synd. Sudden Arrhythmia Death Syndromes (SADS) Foundation We are dedicated to save the lives and support the families of children & young adults who are genetically predisposed to sudden death due to heart rhythm abnormalities.
Sudden Infant Death Syndrome Sudden Infant Death Syndrome Alliance    First Candle/SIDS Alliance is a national nonprofit health organization uniting parents, caregivers and researchers nationwide with government, business and community service groups to advance infant health and survival.  With help from a national network of member and partner organizations, we are working to increase public participation and support in the fight against infant mortality.        
Any Baby Can, Inc. Every child deserves to be accepted, appreciated, and loved; receive proper nutrition, adequate health care, education, and all the things that will give him or her a chance for a healthy life.
Supranuclear Palsy Society for Progressive Supranuclear Palsy, Inc.       Progressive supranuclear palsy is an under-recognized brain disease. Symptoms typically begin in one’s 60’s, but can start as early as the 40’s. Those affected usually survive six to ten years after the initial symptoms occur. In people with PSP, gradual loss of certain brain cells causes slowing of movement and reduced control of walking, balance, swallowing, speaking and eye movement. People with PSP eventually become wheelchair bound or bedridden.   
Sydenham's Chorea Worldwide Education and Awareness for Movement Disorders WE MOVE is the Internet's most comprehensive resource for movement disorder information and the hub of movement disorder activities on the web. 
Synesthesia American Synesthesia Association (ASA)   The American Synesthesia Association, was created in 1995 to provide information to synesthetes and to further research into the area of synesthesia. The ASA Inc.'s mission is to foster and promote the education and the advancement of knowledge of the phenomena of synesthesia, and to promote and provide a means for the people who experience and/or study synesthesia to be in contact with each other. They have a rare condition called Synesthesia, in which the customary boundaries between the senses appear to break down, sight mingling with sound, or taste with touch.
Syringomyelia American Syringomyelia Alliance Project     The symptoms of SM are numerous and a person may have various combinations of different symptoms. Symptoms tend to develop slowly, although sudden onset may occur with coughing and straining. Some common symptoms include: loss of sensitivity, especially to hot and cold, muscle weakness and spasticity, motor impairment, loss of bowel and bladder control, as well as osteoporosis and scoliosis. The majority of patients suffer from headaches and chronic pain.      
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